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Research and reports

As a charity we work together with the families we support to produce research sharing their views and experiences. We ensure their voices sit at the heart of everything we do.

A boy in a red polo top sits in his wheelchair, smiling and playing on his games console. Behind him sit his mum and little brother.

We do research to better understand and showcase, the daily lives and the challenges families raising a disabled or seriously ill child face.

Our team undertakes regular research surveys and polls, as well as one-to-one interviews to gather up to date findings. We also partner with other organisations carrying out related research.

We use research findings to continue to develop the grants, services and wider support we provide. This helps us to make sure we are properly meeting families’ needs. We also develop research reports to provide our partners, and the general public, valuable sources of information and experience.

Read our research reports Contact our research team
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The Cost of Caring 2025

Our new research shows that UK families raising disabled or seriously ill children and young people are being driven further into debt and unable to meet vital extra caring costs including specialist equipment, utilities, medical appointment travel, food and increased wear and tear on the home.
Read The Cost of Caring 2025