Family Fund supports more and more families every year across the UK.  There are other organisations that provide services, advice and other help to families raising disabled and seriously ill children.  Take a look at some we have listed below to see where you might get further help and support.

Advice Local 

Advice Local is a service that helps families search for information tailored to their local area, including details of independent advice, organisations and charities. Information is available on a range of key areas, including: disability and social care, welfare benefits and tax credits, council tax, debt and money advice, employment and work issues, and many more. It works by entering a postcode and selecting an advice topic. You can also create your own personalised list of helpful resources. 

Carers UK
The UK’s only national membership charity for carers and is both a support network and a movement for change. They are there to make life better for carers by giving expert advice, information and support. They have carers’ groups and volunteers in local communities across the UK and online and campaign on behalf of carers for lasting change.

Cauldwell Children 
Caudwell Children provide family support services, equipment, treatment and therapies for disabled children and their families across the UK. They run their Enable Sport programme for talented disabled athletes and their Destination Dreams holiday for children fighting life threatening conditions.

Contact a Family 
A national charity for families with disabled children, who provide information, advice and support. They bring families together to support each other and campaign to improve their circumstances, and for their right to be included and equal in society.

Council for Disabled Children  
This is the umbrella body for the disabled children’s sector in England, with links to other UK nations. They work with members and networks to influence national policy, working with disabled young people and parents in local areas. They focus on several key areas including education, health and social care.

Counselling Directory 

Counselling Directory is a helpful resource for those in distress and need to seek help. The website includes details about different types of disabilities, when you should look for help and what you should be looking for in a counsellor or psychotherapist. Counselling is not limited just to those with disabilities, it can be useful for partners, family and also the carers.

Disability Grants 
Disability Grants helps parents and carers of a disabled child or adult with information about charities and trusts who provide funding towards the high cost of disability equipment, holidays, housing, days out or anything that is above and beyond the normal costs of everyday living.
They save carers and families time by providing information about what is available nationally and locally.

Grandparents’ Association 
A national charity which supports all grandparents and their families. They host a helpline to provide expert advice on all aspects of grandparenting, including welfare benefits. They work with government, local authorities and campaign with key charities to raise awareness of the needs of grandparents.

The Independent Panel of Special Education Advice offers free and independent legally based information, advice and support to families in England to help get the right education for children and young people with all kinds of special education needs (SEN) and disabilities.

MASIS - For Equality and Inclusion
MASIS (Mobility and Support Information Service) provides a wide range of information and support relating to disability, along with its motor vehicle supply scheme, which is open to disabled people, their nominated drivers, friends and family.

National Network of Parent Carer Forums 
Membership of the National Network of Parent Carer Forums (NNPCF) is made up of Parent Carer Forums from almost every local authority area in England. Their function is to develop cohesive good practice and effective participation and a solution focused approach at all levels, locally, regionally and nationally.

Newlife - The Charity for Disabled Children 
Newlife is the UK’s largest charity funder of children’s specialist disability equipment. They also run the UK’s only national emergency equipment service for terminally ill children. Their nurses support thousands of families, campaign for policy change and fund targeted medical research to improve child health.
Newlife equipment includes beds, seating, wheelchairs, communication aids and much more. The equipment can relieve pain, keep children safe, prevent conditions worsening, give independence, the opportunity to learn, or improve a child’s quality of life.

Sibs is the only UK charity representing the needs of siblings of disabled people. They support siblings of all ages who are growing up with or who have grown up with a brother or sister with a disability, long term chronic illness, or life limiting condition. They have a phone and email service to provide advice and support, an online forum and also run workshops.

Steve Morgan Foundation: Enable
The Steve Morgan Foundation's Enable fund provides support for disabled people in North Wales, Merseyside, Cheshire and North Shropshire who are in financial hardship to obtain specialist equipment that cannot be supplied by the NHS, Education or Social Services.

Grants are available for:

  • Mobility aids, wheelchairs, buggies, hoists, trikes, etc.
  • Specialised beds and sleep systems, postural chairs, seating and car seats
  • Sensory equipment
  • Communication aids, specialised software, specialist alarms
  • Medical equipment, support wear


SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families of children and young adults with undiagnosed genetic conditions. SWAN UK provides information and support to families as well as running fun, inclusive family events. They also educate professionals about the issues faced by families affected by undiagnosed genetic conditions, and help improve services so that all families receive high-quality coordinated care and appropriate testing/treatment.

Turn2us is a national charity that helps people in financial hardship to gain access to welfare benefits, charitable grants and support services. They do this through their website, helpline and by providing training workshops to partners who provide face to face advice using Turn2us’ online tools.