Tired all the Time

Tired all the Time, published in 2013, reveals the impact of sleep difficulties on households, capturing first hand experiences of over 2,000 parent and carers raising disabled children across the UK in their own words.

Key findings show:

Over 93% are up in the night with their children
49% have health issues due to the lack of sleep
22% have had relationship problems as a result
11% experience tiredness at work
15% are concerned about siblings and the wider family’s health
Almost a third had not sought professional support.

Parents, carers and wider family members, including siblings, are experiencing significant financial, social and emotional challenges as a direct result of not having enough sleep.

Families from across England, Northern Ireland, Scotland and Wales shared with us how widespread the issue of sleep deprivation is. This report is in response to the demand to raise the issue on families’ behalf, giving them a voice. The report draws attention to this key health issue that can affect the whole family’s health and well-being with long-term consequences such as limiting opportunities in education and employment.

Families’ responses identified three key needs to be shared with policy and decision makers across the UK and other charitable organisations:

To be listened to, believed and heard when they talk about sleep difficulties
Their concerns are acted upon at an early stage
Timely and regular support, not just one consultation, as sleep deprivation is often not a short term problem.

Read the report.

We have now developed our own website with a wide range of tips and resources to help parents raising disabled children who are experiencing sleep issues. Click here to visit Tired Out to find out more.

Latest

Customer Services Administrator

Are you looking for a role where your talents as an experienced administrator can benefit the work of a charity?
Wolverhampton iPad workshop

Live in Wolverhampton and want to learn how to make the most of your iPad?
Fundraising Manager

Are you looking for a role where your talents as an experienced fundraising professional can benefit tens of thousands of families raising disabled or seriously ill children and young people?
First Contact Team Officer

Are you looking for a role where your talents in providing people with important information and assistance benefit the lives of families raising disabled or seriously ill children?

The cost of healthy eating for older carers raising disabled or seriously ill children

This report, published in December 2017, highlights the particular challenges facing grandparents and older carers in affording healthy food for themselves and the disabled or seriously ill children in their care.
Do Siblings Matter Too?

This joint report from Family Fund and the University of Portsmouth reveals the impact a disabled brother or sister has on a child or young person, showing their experience first-hand through photographs.
Siblings of disabled children need more support

A new report shows that the needs of thousands of siblings of disabled children are often overlooked, with many of them providing significant care and emotional support to their brothers and sisters.