Salena Begley MBE, Family Fund’s Scotland Partner Engagement Manager, has spoken to BBC Woman’s Hour this morning about the support available to parents and carers raising disabled children and young people.

The programme included topical conversation around waiting for assessments and diagnosis. Lauren, a parent carer, wrote into the programme about the challenges she’s faced with support and help in getting a diagnosis for her son.

Salena said, “I’ve worked with families raising disabled children and young people for well over 20 years and it’s been a privilege. The frustrating thing is that I’m still hearing about the same challenges from families that I heard 20 years ago and that includes the bewilderment and confusion they often feel trying to navigate systems that are new to them, jargon that is new to them, working with professionals that are new to them and trying to understand all of that.”

“Family Fund is a grant making charity, but we also recognise that families have got much wider needs, including practical and emotional support.”

Salena spoke about the additional challenges that parents and carers of disabled children and young people face. She also mentioned the further challenges that Covid-19 has brought and how families should approach waiting for assessments and diagnosis.

You can listen to the programme here: BBC Radio 4 Woman’s Hour 25 August and the follow-up conversation Lauren had with Woman's Hour on Tuesday 31 August.