Our latest survey shows families raising disabled children are still struggling emotionally and financially six months after lockdown began, as well as facing continuing uncertainty about the lifting of restrictions due to their children’s health vulnerabilities.

Following our initial findings into the impact of the pandemic and subsequent lockdown in May, we found that half of the families we spoke to continue to report a loss of income and more than three quarters are experiencing increased household costs. Elijah’s dad Allan, who is a joiner for the local council, lost around £275 in income each month due to not being able to take jobs where there might be any risk of contracting the virus - Read Elijah’s story.

As families recover and re-engage with health and social care professionals, 62% say their child is still receiving less support than before the start of lockdown. Kayleigh mum to Elsie said; “The risk of regression or deterioration in Elsie’s health due to cancelled or postponed appointments, and the concern about how we can continue without a break is quite simply overwhelming.” – Read Elsie’s story.

Around a quarter of the families surveyed were on the official shielding list and more than half remain worried about the risks to their child’s health posed by Coronavirus, as disabled children and their siblings return to specialist and mainstream education settings. 

Cheryl Ward, Chief Executive of Family Fund, said;93% of families told us that the pandemic has had a negative impact on their and their child’s health and wellbeing, so they’re emerging from an exhausting and really challenging period.”

“Since May, we have seen applications for support surge by over 40% from families struggling with the impact of Coronavirus. Many are still unsure about how to step back into their normal lives and do not feel lockdown is over for them.”

“It is crucial that families know this support exists for them and that funding into services for disabled children is maintained, so that they’re supported to recover from this uniquely difficult period.”

Read the results of our latest survey here - The end of lockdown? The last six months in the lives of families raising disabled children. UK Findings - September 2020.

Read our feature on news here - Families raising disabled and ill children are concerned their health and wellbeing has deteriorated during Covid-19 pandemic